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For almost 2 weeks I've had no words, or words that make sense anyway.  I still don't think these words make sense, but at least there out of me.  

4/24 I went for my regular mammogram. 5/4 I received my official Invasive Breast Cancer Diagnosis. I guess when you expect something long enough, it eventually shows up.  

It's early in the process, but here are some things I KNOW already.  

I know that when you hear this news, you reel for a few days. To me, the greatest fear of all is the fear of the unknown - so the sooner you get information & education, the sooner you can get your feet on the ground and do what needs to be done.

I know it's important to get your feet on the ground so you can take charge. If 3 weeks is unacceptable for you to wait for another appointment – you need to be able to say it. You need to be able to research & find something else that is acceptable.  

I know that you have to make big important decisions, and you have to make them quickly. You need information to make the decisions that are most right for you.  

I also know that it's not so good to read Aunt Mary's blog about her experience with Breast Cancer on the internet. There are thousands of variables and you & Mary are not the same... Ok, the 2 year blog I read ended badly for "Mary" only 1 month ago – and that big finish was not what I needed to hear so early in the process, with the little information I had.  

I know that Breast Cancer diagnosed at any stage is beatable; some just have better odds than others.  

I know that I'm a tough bitch and this will serve me well on this journey.

I know that I'll put one foot in front of the other – every day.  

I know that when this is over I have another purpose. I want a new law that states the following:
If you operate a facility that can diagnose "Cancer" you must offer a 90 minute education/consultation/preparation session to the patient within 48 hours of said diagnosis.  

I kept telling my husband... "This doesn't feel right. Shouldn't I get a f***ing pamphlet or something???" (Apparently I know I'm going to swear more now too)  

On my own, I found a Patient Navigator who I met with yesterday.  Not only did I get a pamphlet – I got a 3 Ring Binder, which is apparently just what I needed. I'm pissed I had to find it myself, and that it was not offered to me at the time of diagnosis. I'm angry that I was sent into the world to fend for myself – to wait too long for appointments & information that's essential at this time. But I have it now - and with it, I have a much better understanding of what's ahead.  

To me – knowledge is power, and at least today – I feel much more powerful than I did yesterday!

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Member Comments

    • 0 votes vote up vote up

      Mjmurphy wrote May 17, 2009
    • Jana, I’m so sorry to hear this news, I cannot imagine what you are going through right now, it must be devastating. I am like you, I want information, I want to know what I can do and what I can expect. I always look for your comments on blogs and so forth because you have a very positive outlook with a wonderful wit. I know that is as important as any treatments available and you are going to get through this. My thoughts are with you.



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    • 0 votes vote up vote up

      Mztracy wrote May 17, 2009
    • You will be in my thoughts and blessings!!

      My sister went through stage 3, all 15 nodes cancerous and she is in year 5 of remission!! There is hope!!

      Blessings!
      xoxo



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    • +1 votes vote up vote up

      UK Girl wrote May 17, 2009
    • Hey honey ......... war vetern here so call on me any time and the key to this stay mad as hell ......

      Knowledge is power and the Internet is fantastic ....

      your in my thoughts  - your not alone



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    • 0 votes vote up vote up

      Jana Toohey wrote May 18, 2009
    • I think I had it in my head that once I exposed myself I would be banned from Fab40 & my membership revoked. Thank you all for your Great Words!!  

      I’m in Denver to go to Univ. of Colo Cancer Center for the whole morning tomorrow. It’s like Speed Dating with Doctors... hope they‘re cute as I’m sure they‘re all going to want to cop a feel, but if they tell me June 15th, you may read about it.

      I joke, but I’m really excited about it, and I was very lucky to get in tomorrow. A universal effort of sorts.



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    • 0 votes vote up vote up

      Mjmurphy wrote May 18, 2009
    • LMAO Jana!  

      So glad you got in right away!!



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    • 0 votes vote up vote up

      Deb Darby wrote May 20, 2009
    • How are you doing today, Jana? How did it go at the Cancer Center? My husband is still finishing treatment for his cancer. Let me know if I can answer any questions or you just wanna say Hi.



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    • 0 votes vote up vote up

      Jana Toohey wrote May 20, 2009
    • Hey Deb,
      I finally found a nest.. it was like Speed Dating with Doctors. I even let some students fondle me. Logistically it will be a little more challenging to go to Denver, but I think it will be worth it. I only cried once & that was when they asked if I could come in the 28th for surgery.. one week from tomorrow. Relief I think.. so now I’m scurrying trying to get everything done, and I don’t even have time to play on FAB40 - but I stalk it when I can.  

      Tell me about your husband.. what kind, how long? What have you done to take care of yourself? I can imagine it’s pretty draining.. that’s really on my mind right now.  

      Thanks for asking friend.



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    • 0 votes vote up vote up

      Susan Dahringer wrote May 20, 2009
    • Hi Jana,

      You have a great attitude and very positive...My aunt has been a 30 plus years survivor.When detected in its early stage and proper treatment ,you will beat it!!! We‘re behind you in every step of the way...

      Sincerely,

      Susan



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