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  • ARE THE COLDER MONTHS FLARING UP FIBRO?

    9 posts, 6 voices, 878 views, started Oct 28, 2009

    Posted on Wednesday, October 28, 2009 by Dana Arcuri

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    • Hello Fab40 Friends!

      I live in Pittsburgh, PA, which is a very wet, cold & damp city during the Autumn, Winter & Spring.  During the summer, I usually experience a decrease in my pain level.  

      This summer, I began aqua therapy to reduce the pain level and I absolutely LOVED the warm water exercises!  (If you have not tried aqua therapy, I highly recommend that you check into this option because it is known as the #1 solution for reducing fibro pain.)

      Due to my husband losing his job & medical insurance, I discontinued aqua therapy in October.  In less than 2 weeks, my fibromyalgia and back pain increased to a MUCH higher degree!

      Soaking in a hot bath of water is simply not the same as exercising in a warm pool that provides plenty of space & room!  However, for now, this is one method of reducing fibro pain.  

      Has anyone else experienced a large increase in their chronic fibromyalgia pain?  If so, where do you live and what is your weather like?  

      Also, what are you doing to reduce your pain level and what has worked the best for you?  I am taking 30 mg Cymbalta, which is not a “cure all“, but it definitely does reduce some of the pain.  (I had been taking 60 mg Cymbalta, but had to decrease it because I encountered very negative side effects.)

      Right now, I sure wish that I was living back in Las Vegas, NV where I used to live since it is so warm and dry!

      Warmly,
      Dana



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        • 0 votes vote up vote up

          Kandykahne 5 wrote Oct 28, 2009
        • Hi Dana, I live in Massachusetts and as soon as the weather gets colder I do feel it! I was put on 2 different anti-depressants but did not like the side effects. Even though I am not depressed they are suppose to help with the brain nerve thing. I have been taking Baclofen and it seems to help. I cannot take many of the pain meds out there as I always seem to have a reaction to them. One sent me to the ER. I like to walk and that seems to help. One other thing is not to ever do it or I pay dearly for it. That is hard for me as I like to be active. As you know there are good days and bad and a positive attitude helps! Arizona sounds good to me!happy



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        • 0 votes vote up vote up

          Sue Piti wrote Oct 28, 2009
        • Hi there, ladies.  I just recently joined the site, please ignore my ignorance as to how to use it so far!  

          Diagnosed with Fibro 2 years ago...and any extreme in temperature makes my pain levels go up.  I am a trainer so work with clients with our issues, but constantly have to remind myself to do what I can do within my range!



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        • 0 votes vote up vote up

          Marya1961 wrote Nov 1, 2009
        • Hi Dana...I live outside of Philly and the climate changes wreak havoc on me.  I, like you, feel better in the summer and quite awful during the cold months.  I was diagnosed last year and presently take Lexapro which does help with the nerve situation as Kandy mentioned...I also take an anti-inflammatory twice a day..Nabumetone which does help decrease the swelling I experience.  The back pain, shoulder, hip and knee pain and tenderness is rough, but I get through.  Do you see a Rheumatologist regularly?  I have found a great one, luckily.  Glad we have each other here to share info with.

          HUGS
          Mary



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        • 0 votes vote up vote up

          Dana Arcuri wrote Nov 2, 2009
        • Thanks for responding to my question, Diane, Sue & Mary!  

          I have not heard or tried Baclofen for reducing pain.  Is this a pain killer or an antidepressant?  Any negative side effects?

          Sue, how did you get involved in working as a trainer?  What types of exercise or therapy have you found to be the most helpful for fibro patients?

          Mary, I used to see a Rheumatologist, but he referred me to a Neurologist who has a fibromyalgia program to help patients reduce their pain and live more productive lives.  The neurologist has a program that is 6 weeks long and there are helpful idea’s and exercises to learn.  

          However, when I was experiencing negative side effects from the one medication that she prescribed to me, she refused to help me and she literally was no help at all.  It was so frustrating for me because she was supposed to be in charge of my fibromyalgia treatment.  

          My motto is “Live & Learn!”  What I have learned in the past 2 1/2 years is that I need to know my limitations and not over extend myself.  I am NOT the same person that I used to be who could work all day and return home to spend the evening cooking and cleaning.  

          I have learned to pace myself, to make my health a priority, to use a variety of methods for reducing my pain level and to lean on my faith to get through the rough times.



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          Kandykahne 5 wrote Nov 2, 2009
        • Baclofen is a muscle relaxant and it is used by patients with MS. I had a lot of problems with muscle spasms. According to my doctor that can trigger pain in people with fibro. The spasms have subsided and the pain is better. As far as side effects I stay on a low dose even if I still have some pain because if I take a higher dose I get light headed and can’t seem to think straight!happy



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        • 0 votes vote up vote up

          Dana Arcuri wrote Nov 4, 2009
        • Diana, thank you for sharing information about Baclofen!  Yesterday, I began aqua therapy, again.  It felt like heaven!  I am praying that eventually my pain level will lessen with continual aqua therapy!



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        • 0 votes vote up vote up

          Mztracy wrote Nov 4, 2009
        • I used baclofen for my MS. For me, I did not like it at all.
          I now use soma.

          good luck in finding the right one for you!



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        • 0 votes vote up vote up

          Kandykahne 5 wrote Nov 4, 2009
        • Your welcome Dana. Good luck with the aqua therapy.happy
          Tracy, I was on the soma and it didn’t agree with me at all!happy



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