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  • Asperger's Syndrome

    3 posts, 3 voices, 472 views, started Sep 10, 2008

    Posted on Wednesday, September 10, 2008 by Btevans

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    • Amethyst
      Offline

      My 13 year old daughter was diagnosed at age 4.  We have come a very long way and I would not trade one minute for anything.  Sure we have our days, we all do, but God has given me this gift and I will cherish this gift for the rest of my life.  If there are any others our there with Asperger’s I would love to hear form you.  We live in a small town in Oklahoma and have to drive for a support group, so that does not happen.  Let’s talk!



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          Michelle Eldridge wrote Oct 24, 2008
        • Good morning, I have a 7 year old son, who at birth, had a pnemo-thorax and a pnemo-mediastienum (sp?) which was basically a collapsed lung with air and fluid in his chest so he wasn’t getting enough oxygen.  On his second day he was transferred to a Children’s Hospital to neo-natal.  He spent a week there.  He seemed to develop normally but there were sensory issues that my husband and I couldn’t figure out like he didn’t like loud noises, having his teeth brushed, getting a haircut and a bit of a speech delay.  During his 4yr well child checkup his pediatrician diagnosed Sensory Deprivation Disorder and suspected Aspberger’s as well.  We started PT & OT.  When he started school they added speech therapy as well.  He did 2 years in Kindergarten with a teacher who didn’t like him.  I kept voicing my concerns and everyone said “Oh, she loves him.  She’s so attentive and caring towards him“.  I thought of course she is when you‘re in the classroom evaluating him.  He was so unhappy to go to school but I knew he needed to be there.  He would make progress over the summer and seem to go backwards once he got in school.  Then this year he is in 1st grade with a FABULOUS teacher who truly loves him and full-time parapro who takes great care of him.  The very 1st eval. he had they said he was a “puzzle” because he had 2 or 3 characteristics of Aspberger’s but not enough enough to label him Autistic and also because he went 2 full days without enough oxygen that most likely did damage to his brain as well.  I guess the social anxiety aspects of Aspberger’s concerns me most because he’s a smart little guy but social situations are somewhat difficult for him.  His aide says that he is making lots of friends and kids approach him to play with them.  That makes me feel so much better.  As parents, it breaks our heart to know our children are having any kind of trouble that we can’t always “fix“.  Please tell me more about yourself and your daughter.  Have a great day, Michelle



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          Btevans wrote Oct 24, 2008
        • Good morning!  You know what is strange is reading something and talking to someone who has the same fears about their child as you do. Makes things seem not so bad.  My daughter is my only child so sometimes I am so worried about the “socializing” that she does not do.  I worry that other kids think since she is an only child that she is a spoiled brat and they won’t want anything to do with her.  But then I think again that God gave her to me to do the very best I could to raise her, and as long as I feel good about the progress we have made and she is happy, then I can forget the rest and believe that in time, she will have friends and such.  Which this year, the 8th grade she has done a lot better and a girl that we have known for a long time has really been a help.  Kayla’s friend has been over more than any other child, plus Kayla talks about her at school. And her friend is very patient with Kayla and invites her over as well.  But it is still so hard because a parent usually wants to give their child more than what they had which is true for me because I have had my best friend for 40 years, since we were 5 and I don’t know what life would be like without her.  And the strange part is, she live in California and I am in Oklahoma and I have lived here since I was 15.  But I know about the fears you have about elementary.  It was a very hard time when she would come home and say, so and so said she would be my friend if I let her cut in line.  Oh my, what went through my mind then. So I daily explained that you don’t listen to anybody who says that.  She eventually would tell the kids NO!  Teachers will make you wonder as well.  I know it is hard to go against a teacher and luckily I never had to, but you are his mother and you know him bestm so please don’t be afraid to ask, visit, and ask more if you have too.  Talk to the principle if you have to.  Some of the teachers and the principle became my friends and this went real well.  Middle school was a little differnt but it has worked out.  I have so much more to ask and say, but I need to get ready for school and work.  So yes, I hope we can get to know each other and hope we can be supportive of each other.  Have a great weekend, if I don’t get back later today.  My husband always tells me, Be Strong!  So I say that to you, Be Strong!



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