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  • Do you use any injectables?

    13 posts, 7 voices, 1021 views, started Nov 9, 2008

    Posted on Sunday, November 9, 2008 by Mztracy

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    • Turquoise
      Offline

      I used Avonex intramuscular weekly for 8 years. Got so good at doing the shot, never even felt it. After about 5 years my hands got the shakes, and one time when I got the needle in my hand went nutty and blood went everywhere. I know TMI! lol it didn’t hurt, just freaked me out. So, hubby started doing my shots, and he rocked at it. Think he just like looking at my bum. lol

      Then they changed me to the sub q Rebif. Did it for 3 mos and said “Whoa” noooooo more!! Not only did it hurt, but my injection site was so bruised that I cried everytime I saw the needle. This had to be done every 3 days!!

      So after doing my own research, I found that at this time none of the injectables have been proven to help the chronic progressive forms of ms. So, I talked long and hard with my awesome neuro and went off the injectables.  

      It has been 2 years, and I feel better as I get no more of the flu like side effects. Remember, MS is different for us all. What is better for one, may not be better for another!

      Blessings!



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          Jomi wrote Nov 17, 2008
        • I have been using Copaxone. I don't really have any side affects from it.  I only get a raised itchy spot that goes away after a day or two.  However, my husband won't help me with the co-pay sooooo I have stopped.



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          Mztracy wrote Nov 19, 2008
        • I could not deal with the sub-q’s. The intramuscualr was so much better. My ms friends thought i was nuts. I remember the first time i saw the avonex needle i almost fell back! lol  

          If he ever puts me back on any shots, I want the avonex!  

          Are you relapsing-remmitting?



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        • 0 votes vote up vote up

          Mztracy wrote Nov 19, 2008
        • it did for me as well. it took about 30 days for that to stop. I would take advil 30 mins before my shot and only at night. Tylenol is bad, as it effects the liver and the shots do that already. Aw the joys!! lol



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          Mztracy wrote Nov 21, 2008
        • Copaxone is a good med. Are you rrms? If so, keep at it. I stopped as I am chronic progressive and ,as of yet, no meds proven to slow my progression. So, for me, it was not worth it. If I had not jumped to progressive, I’d still be getting shots in my bum one a week!! lol

          If you have any questions, do not hesitate to ask!



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          Mztracy wrote Nov 23, 2008
        • Hi sassie!  

          You are so right, you do not need new ones to progress. It has to do with where they are located and the damgage that has been done already.

          You may be having an exacerbation and not progressing. Sometimes the exacerbations can last awhile, so do not get too concerned yet. Talk to your doc and see what he/she thinks. Now that most of the hot weather is going away, you may begin to feel better. (depending o where u are)

          But, like i say, we are all different in our ms. Keep us posted.



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        • 0 votes vote up vote up

          Lovemykids2 wrote Nov 30, 2008
        • Although I do not have MS, I feel so bad for all of you who suffer from this disease.

          Are any of you open to exploring how optimum nutrition can change your lives? I can put you in touch with people who had/have MS and how nutrition has changed their lives.  I say had/have because the product does not cure but feed your body on the cellular level everything your body requires daily.

          If nothing else, listen to some stories and know there is hope for all of you to change your lives.

          I look forward to speaking with all of you.



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          Pjohns wrote Dec 2, 2008
        • I do have RR MS and diagnosed in 2006 and use Avonex.  As for the injections, I have to give them myself (I have control issues).  At first, I did experience the flu-like symptoms but now I don’t really have any effects.  I make sure I am very hydrated the day of the injection (water and green tea).  In fact, the day after I teach an aquasize class at 8am for 1 1/2 hours.  Yes - afterward I have to rest - I am exhausted.  I have found that nutrition is a crucial component in the balance of prescription drugs, exercise, and supplemental vitamins/minerals.



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          Pjohns wrote Dec 10, 2008
        • You do have to keep in mind that the injectables are not a cure.  All Avonex and Rebif and the others do is retard (or slow down) the occurance of new lesions.  New lesions can happen at any time.  I do have bouts with Optic Neuritis what happens is that my left eye sight is blurry for awhile (a week or so) then it clears up.  It is not maybe 100% of what it was but manageable.  I also have very dependent on my sight.  I work in acadamia therefore - reading is very important also I do quite a bit of sewing.  So I can understand your apprehensions.



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