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  • How involved are you with your pain?

    15 posts, 8 voices, 845 views, started Apr 5, 2009

    Posted on Sunday, April 5, 2009 by Conakat

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    • Amethyst
      Offline

      I am insistent that I am on my way up. Fibromyalgia kicked my tail for a while, but with a lot of support and the hope of warm weather I am on my way back.

      When I became ill in 2006 I became very “self-involved” everything was about my pain and about how I felt and how I was going to survive the pain and fatigue. I am trying to put it in perspective now, and trying to expand my little universe so my pain takes a backseat. It could only help, right?

      To that end I’m in an online class to help manage the symptoms. It requires a LOT of charting and logging of symptoms and such, but I think it’ll be worth it in the end to just get a handle on it.

      Anybody else on this path? Or already been there, done that and can provide insights on how to get there from here? I want to have a full, complete life...I’m sick to death of navel gazing!!



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        • 0 votes vote up vote up

          Conakat wrote Apr 5, 2009
        • You‘re looking...? So please comment. I don’t bite! And I’m really curious how other people handle this...



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        • 0 votes vote up vote up

          Tuliplady wrote Apr 5, 2009
        • I have no insights to offer, just wanted to say, I think it’s wonderful that you‘re on the path to recovery.



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        • 0 votes vote up vote up

          Mshamp wrote Apr 6, 2009
        • What kind of on line class are you taking?



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        • 0 votes vote up vote up

          Conakat wrote Apr 7, 2009
        • self-management of Fibromyalgia. Highly recommend it if you have fibro or CFS/ME. The website is: www (dot)cfidsselfhelp (dot) org



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        • 0 votes vote up vote up

          Mshamp wrote Apr 7, 2009
        • Thank you! I applied for the scholarship to take the course. Since we have 5 teenagers at home and I went on Disability leave in January money is very tight, but I so want to take the courses to learn how to live a semi normal life.  God Bless You, :)



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        • 0 votes vote up vote up

          Conakat wrote Apr 9, 2009
        • Another website that might be of use is invisibledisabilities (dot) ning (dot)com (sorry, won’t allow me to post the link—whats up with that?) it’s quite a robust site with forums and chats and such just for people with “invisible” illnesses. You might want to look up a lady named Conni who is quite involved with the site. She has six kids at home! Best of luck!



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          Mjmurphy wrote Apr 10, 2009
        • I have rheumatoid arthritis, so it is similar to your condition and a lot of pain. I did the journaling thing and it helped me in a few ways. It gave me evidence that most days were bad just like I was telling people they were...I had been hearing from many people close to me that it couldn’t be that bad...so it helped me to trust myself and not listen to what other people thought I was going thru. It also helped me to see the good days and it helped me to see the triggers that were making me worse. The reason I mention what other people were telling me first is because I found that a big part of my health issues came from not having support from family and friends and basically being someone they used or their doormat...stress is a big issue with both of these conditions.  

          I am living with little problems now. I don’t hang out with people that make me feel bad about myself or don’t support me. I eat better and exercise—both of these things I found helped in the journal. I also take vitamins and herbs daily that help. I found information on these at the National Arthritis Foundation website. I tried different combos while doing the journal till I found what worked best for me. I read books on power of positive thinking and self healing and used those methods too.  

          I hope this helps you.



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        • 0 votes vote up vote up

          Conakat wrote Apr 10, 2009
        • Thank you!

          I am more than my symptoms and limitations, I don’t want be defined by this illness, there’s so much more to me and to my life. I tend to forget it when I am wrapped up in my pain.

          Are you able to put your illness in the back of our mind (so to speak) and just truly enjoy life? Some people think you can’t be happy when you‘re in pain...but I can’t stand the thought that I’ll never be happy again and I refuse to let it win...



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        • 0 votes vote up vote up

          Mjmurphy wrote Apr 11, 2009
        • I am enjoying life more than ever! I don’t have pain everyday now like I did a few years ago. I’m sorry if I didn’t make that clear. All of the things I mentioned got me to where I am now, where I have little problems with it.

          There are periods now when I will get inflamed somewhere, it was my neck a month ago, it went on for a couple of weeks and had the nerve agitated so it was extreme. I got through it in a fog. That is the worst that I’ve had recently. Here and there I hit a little bump in the road but most days are good and I celebrate the good days and live it up while I can.



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        • 0 votes vote up vote up

          Mshamp wrote Apr 12, 2009
        • Thank you for all the help, Happy Easter.



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        • 0 votes vote up vote up

          007pouty wrote Apr 12, 2009
        • I don’t have Fibromayiagla, but do have arthritis, dealing with the day to day pain is sometimes unbearable.  But, the days when there is no pain really is great!
          I wish you the best of luck.
          Also, to Conakat thank you for the website information.
          007pouty



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        • 0 votes vote up vote up

          Marya1961 wrote Apr 28, 2009
        • Thank you so much for all this information..I hope you all continue to feel well with each passing day...I was diagnosed with Fibromyalgia last July and it has affected the nerves in my neck, shoulders, spine particularly...my rheumatologist defined it as Arthritic Neuropathy...boy oh boy, does my body ache like crazy at times...the inflammation can be brutal...I have adopted a great exercise plan, eat organic, take probiotics and also some conventional medicine..you do what you have to do to ease every day and the number one thing I have learned as mjmurphy said..“Don’t listen to others if they bring you down, only look to those who boost you up.“estatic



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