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  • How is everyone doing?? Quick check in, please?

    17 posts, 7 voices, 759 views, started Oct 28, 2009

    Posted on Wednesday, October 28, 2009 by Mayra Braselton

    •  



    • Amethyst
      Offline

      How are you doing?? How’s your pain? On a scale from 1 to 10, how would you rate it?  

      Have you done anything new that has helped your pain? Or made it worse?

      Thanks for your response, in advance.

      Take care,

      Mayra



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        • 0 votes vote up vote up

          Mayra Braselton wrote Oct 28, 2009
        • Well, I’ll go first.  Since I got off one of my meds, I’ve been challenged.   I also take anti depressants, that I hate, but must take. When I stop, I cry over everything.  It’s part of the coming off meds, but it’s still frustrating.

          SO I’ve shared something very personal to me, and I hope you will share too.

          Thanks for reading this far.



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          Kandykahne 5 wrote Oct 28, 2009
        • I have fibromyalgia. I’ve been on several anti-depressants and I went off them. Didn’t feel any better actually worse to the point I wasn’t functioning very well. The meds I’m on now are working to a point where the pain level is tolerable, about a 3 right now so I’m okay with that. It does get worse when I over do it. I’m always on the go and I cannot let this get me down or stop me from doing things I love to do!happy



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        • 0 votes vote up vote up

          Mayra Braselton wrote Oct 29, 2009
        • @Diana, 3 is great!! Sounds like you’ve had a bad experience with meds. I have had some meds work against me, so for me.  I was taking Cymbalta for a while. Not taking it right now, but rethinking it.  Are you familiar with that med??

          Keep up the good work, sounds like you know what you want with your time, and how to make it happen for you.



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        • 0 votes vote up vote up

          Kandykahne 5 wrote Oct 29, 2009
        • I am familiar with Cymbalta but have not taken that one. I have to be careful with pain meds as I tend to have a reaction to some. One sent me to the ER. I do my own research on fibro. and ask questions before taking any meds and read up on them as well. Just because your doctor thinks you should take them doesn’t mean you have too! I know some people take whatever their doctor recommends no questions asked. I have a pretty good neurologist as my doctor now so I’m happy about that. My main problem right now is chronic fatigue and staying awake!ohhhh



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        • +1 votes vote up vote up

          Billionairebabe wrote Nov 19, 2009
        • New to the site and group, attacked with sciatica on right leg to ankle which limits my driving, etc.. chiropractor had helped in past but with a trip of 6 hours 2 months shot me over the edge, and went to general practioner, which only band-aided me with pain pills which I hate, because of side effects..have set up an appointment with an accupuncturist/chinese herbologist...searching for some relief, pain is dibilating, people don’t understand it unless they’ve tasted it..



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        • +1 votes vote up vote up

          Billionairebabe wrote Nov 26, 2009
        • wow, blessed today to walk with assistance of back cincher 2 miles and off pain pills for 5 days, loving the back cincher, wear it all day. visited a accupuncturist/chinese herbalist—not quite ready to jump full force in this area but keeping him on the back burner..pressing thru...



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        • +1 votes vote up vote up

          Conakat wrote Nov 29, 2009
        • Diana, me too on the drugs. My doctor in Seattle tried just about everything on me and my side-effects were off the charts weird. We ended up with narcotics as the only effective way of reliving the deep bone pain I’d get in the winter. Now that we‘re living in San Diego there’s far less of the pain. Which is good because doctors down here don’t want to touch fibromyalgia with a ten-foot pole! It’s been an experience!!

          But in spite of the decrease in pain I've noticed that without the oxycodone I become depressed and lethargic (there's a lot more to this story...but I'm not addicted nor am I dependent on narcotics at this point). I've been doing my research and it appears that it's some kind of depression. I am looking into [Link Removed] I found a doctor who will prescribe LDN and got my fingers crossed!!


          Conakat, Your links have been removed, please consider upgrading to premium membership.



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          Dana Arcuri wrote Nov 30, 2009
        • The one thing about pain is that every single individual has a totally different threshold for what they consider “minor pain” versus “excruciating pain.”  Therefore, what one individual believes to be a level 5 in pain could very well be considered a level 8 to another individual.  

          This is what is so confusing about physical pain.  What makes it more complicating is when my physical pain changes within a short period of time.  For example, I may wake up and feel achy all over with my low back throbbing.  I rate my pain level a 6.  

          Then as the day progresses, I soak in a hot bathtub for 30 minutes, I apply an icepack to my low back on and off for 15 minutes. Gradually, I begin to experience a decrease in my pain level and I rate my pain level a 4.  

          Does this mean that I am in minor pain?  Does this mean that if you were experiencing the identical pain that it would be considered a level 4?  

          Pain is unique for everyone and I try to not focus on the level, but rather I concentrate on finding positive methods to reduce my pain.



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        • 0 votes vote up vote up

          Owlmaria wrote Nov 30, 2009
        • My turn!
          Physical pain level - 7 1/2 and am on 2 different med.s for that, 1 for moderate and 1 for severe. I have had everything from chiro. to acupuncture to shots in various places in my back. Antidepressants, I’ve taken just about every one on the market and like Diana I’ve researched everything b/c I now have problems from med.s that Dr.s put me on to “help” and had severe reactions to them. Now I’ve had to add other med.s to take care of Parkinson’s spasms, etc......
          Mental pain level- 20 and does not help my physical at all.
          Just when I think it’s going to be a good day, I have another bladder infection, signs of another kidney stone, foot-drop and unable to see out of my right eye with drooping of mouth, then my back.
          It never ends..... one thing after another.
          Dana, I’ve done the same thing and think, ok, now I’ll be feeling better and can at least try and get something done. But it doesn’t last. It never does.
          I’m going to try and find a GYN who will check my hormone levels and maybe start me back on them plus my B12. It’s been years but after reading Dr. Maddens’ blog, I realized that a lot of my problems got worse after my current Dr. stopped giving me my hormones & B12.
          Please pray I find someone who’ll at least understand & help me. Anyone know a good GYN in the lower/middle SC area?
          I’ll even go over to GA for that.
          Thanks mayra for starting this, really helps talking to others who understand how we feel.
          No, no one has ever mentioned fibromyalgia to me but with my luck they’d just ad it to my list.



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        • 0 votes vote up vote up

          Conakat wrote Nov 30, 2009
        • Not only is the pain threshold different for every person, but it’s different at different times for me. If I’m upset about something and I start flaring...it’s time to just bag it and go to bed. If I’m in a happier frame of mind I can deal with it so much better and it just doesn’t feel as painful.  

          And I’m noticing that since I’ve been meditating on a regular basis (okay, it’s only been a month, but still...)the pain doesn’t feel quite so overwhelming. No, the pain isn’t all in my head, but I think being in a calm state of mind helps me deal with it much better.



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        • 0 votes vote up vote up

          Owlmaria wrote Nov 30, 2009
        • Kathy don’t you just hate it when you hear THEM say “It’s all in your head!”
          It isn’t! My body has a mind of its own and I’m just along for the ride.
          Bed would be nice and some days that’s where I’d rather be but life has other ideas. I have to work through most of my pain b/c of my son and everything needing to be done around here when hubby isn’t here.



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          Dana Arcuri wrote Nov 30, 2009
        • Conakat,  

          I absolutely agree with you about the fact that when we are emotionally stable, calm and at peace, our physical pain does not appear as severe.  Yet, if I am stressed out, upset, depressed or irritable, LOOK OUT!  Negative moods do tend to have a negative impact on my physical wellbeing.  

          I have a question about when you meditate:  Do you have a word or mantra that you repeat silently in your mind?  How many minutes do you meditate?

          Maria,  

          I have experienced so many of the same medical issues as you.  The foot drop sounds related to low back problems.  By chance do you have any bulging or herniated discs?  Three years ago, when I had started to experience severe back pain in the low lumbar, the pain began radiating down my legs and into my feet.

          After 3-4 weeks of experiencing chronic back and leg pain, I began to experience foot drop.  I will never forget how challenging that was to try to walk normal because it was difficult.  Finally, I had an MRI, which showed that I had bulging discs in the low lumbar/sacrum area.

          At the time, my doctor gave me steroids and muscle relaxers.  In all honesty, I was experiencing severe and chronic pain so I took the medication and did begin to feel better.

          Then I ended up gaining 20 lbs, discovered that the steroids caused me acid reflux and yeast infections!  (Grrrr!)  It is like a never ending soap opera!  (Hey, maybe we can write a book about it!) LOL!

          The kidney stone challenge is like a “thorn in my side” because it never seems to be healed or to go away.  The pain of a kidney stone attack feels worse than natural childbirth!  (And I even gave birth to one of my babies 100% free of all medications!)

          I have done much research on kidney stones and it appears that there is a strict diet to help reduce the pain.  One fruit that I can no longer eat is grapes, due to causing severe kidney stone pain.  If you check out many websites about kidney stone diets, there is a helpful list of the “Do’s & Don‘ts.”  

          Bladder infections are so rough!  I honestly think that females experiencing menopause, fibromyalgia or any female challenges have a tendency to get bladder infections (UTI) more frequently then others.  What I have learned through the years is to take acidolphilus supplements.  It has made a HUGE difference in both myself and my daughter who are prone to getting bladder infections.  

          The problem my daughter and I experience with having recurring bladder infections is that antibiotics cause us to get yeast infections.  Instead of taking antibiotics, we now take a natural supplement called D-Mannose, which I buy at a health store.  

          One last thing to mention is that if you are dealing with kidney stones this may explain some of the back pain.  Many adults encounter back pain with kidney problems.  

          I sure pray that you recover from these medical challenges and feel better very soon!



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          Owlmaria wrote Nov 30, 2009
        • Thanks Dana, I have had so many of the same problems as you & had to have 4 stones removed( biggest 5.5mm) and recurring bladder infections are a pain. Have to be very careful w/ any fever due to last Dec.( 1 week before Christmas) I had a fever of 103.8 from bladder that went to both kidneys. I know the difference between “just” back pain & that “I want to die” kidney stone pain. From kidney down the stem to the bladder, I know the route well & my body is one of those that rejects stents!!!!!! Mercy, the pain, if the stone wasn’t bad enough then the spasms from my body trying to get rid of the stent. I presently have 3 confirmed stones in my left kidney. That’s why I was absent most of Oct. My 50th BD was in the hospital. I also had a bleeding ulcer in my bladder with an infection that had not responded to any of 3 antibiotics. They couldn’t take any chance of me getting another high fever.
          Good luck to you & your daughter, they run in the family you know!



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          Dana Arcuri wrote Nov 30, 2009
        • Maria,  

          I am so sorry to hear that you have had to endure so much medical grief!  My kidney stones have never been as large as yours and my doctor said that mine would pass “naturally.”  No matter how tiny they claim that it was, it felt horrible.  I think that the stone never passed because every once in a while I experience excruciating kidney stone attacks and it is ALWAYS on my right side.  

          Do you notice that your kidney stones are on the same side?  I had kidney stone problems about 8 years ago and I hope that I do not have to encounter this medical condition in the future, but the statistics prove that once an individual has had one kidney stone, the chances are greater to eventually get more.

          Your “50th” birthday sounds like NO Fun!  Do you think that your body is getting too used to the antibiotics?  I have heard about other individuals having similar experiences, due to antibiotics no longer working.

          I pray that your kidney stones do not cause on complications or challenges during this holiday season.  I am sending healing prayers your way!

          Take care!



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          Conakat wrote Nov 30, 2009
        • Dana, just one quick comment before I go to bed. The meditation that the life coach started me out on is diaphragmatic breathing. The MP3 file can be found on her "[Link Removed] website. Scroll down to the bottom and the file will be there. It's called diaphragmatic-breathing1. It's only 20 minutes long...but that's where she wants me to start and I have to tell you...I've never relaxed so completely in my life! It's a wonderful feeling...

          Okay bed time. I’ll read more tomorrow. Thanks ladies, it’s been fun talking to you!


          Conakat, Your links have been removed, please consider upgrading to premium membership.



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          Mayra Braselton wrote Dec 1, 2009
        • You Ladies are such an inspiration to me. God Bless you!



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