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  • I have fibromyalgia!

    10 posts, 8 voices, 558 views, started Aug 22, 2008

    Posted on Friday, August 22, 2008 by Queenbee

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    • Aquamarine
      Offline

      I have fibromyalgia....do you?  I’m starting to realise that it’s time to start making lifestyle changes.  My body can’t keep up any more.  The recovery period from doing too much is days instead of hours.
      Anybody have any suggestions on getting through the days?  And nights?



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        • 0 votes vote up vote up

          Wendiful wrote Aug 27, 2008
        • I to suffer from fibromyalgia for the last year I have been taking MaxGXL and the pain is more than 50 less,  if I was not introduced to this product by a friend I would not be able to do anything I was a complete zombie of pain, When I took the pain meds I would be even worse it just put me to bed for the day I would have rather walked around like my zombie so I had some life.  Check out the website if you would like it just may change your life as it did for me.
          www.comeonmax.com
          let me know what you think



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        • 0 votes vote up vote up

          Mom4boys wrote Sep 2, 2008
        • Wow my mom has it I feel so bad for her I really wish there was a great cure



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        • 0 votes vote up vote up

          Darkangel4 wrote Sep 11, 2008
        • I was diagnosed a few years ago. I got on a 2 year study and I simply changed my lifestyle. I exercise and eat better. It has helped. I have been going through some stress now and it can creep up but for now I’m staying  stable . Everyday will be different I started to pay attention to what I ate and how it responded in my body then I would try to do some exercise everyday. The biggest thing was going to the mailbox (mind you it wasn’t that far) but everyday I took a few steps and then after awhile I was able to walk longer than the mail box. It takes time. You can also try and join a group specifically for your condition. HTH (hopes that helps)



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          Coachmombabe wrote Sep 22, 2008
        • I thought I had it about 10 years ago, even visited with a rheumy who said I might. But I eliminated some troublesome foods from my diet and had remarkable results. But now it seems that it has reappeared. I’m pretty careful how I eat, but I do need to be more active. I think my flareups may be connected to a thyroid condition I have. So that makes me wonder, is it FMS?  

          I start every day with a hot bath, that seems to help. I also take naproxen with the pain gets too distracting. It’s the fatigue and brain fog that really gets me down during a flare. I haven’t found anything that helps with that except for indulging in short naps.

          Blessings,
          Cindy



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        • 0 votes vote up vote up

          Queenbee wrote Sep 22, 2008
        • Hey Cindy:
          My Fibro went away for 2 beautiful years.  It was amazing! But...then it came back. Hot baths and naps are a huge part of my daily/weekly routine. I work crazy hours so can’t nap during the week but I try to make up for it on weekend. Another thing that I’ve found to be helpful is those thermo-wraps - the ones you buy at the store and can wear them all day. Those are awesome. I never had much luck with naproxen or ibuprofren or any of those. Now it’s serious pain meds that at least take the edge off. Yes - it’s been proven that thyroid and FMS go hand in hand. Do what you can to get the thyroid under control.



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          Tuliplady wrote Sep 27, 2008
        • How does one get a diagnosis of FM or CFS?  I’ve thought for years that I’ve probably got one or the other, but good heavens, I can’t afford to be going to doctors all the time until one of them finally figures out why I’m always exhausted!  I’ve just quit one of my jobs because my body just cannot cope with it anymore.



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        • 0 votes vote up vote up

          Coachmombabe wrote Sep 27, 2008
        • Thanks for the encouragement, Queen! I’m on a low dose thyroid med. It really, really helps! I let it lapse for a couple of weeks and sure noticed the difference, I won’t do that again!



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          Dana Arcuri wrote Sep 27, 2008
        • Wow!  I sound like most of you with the overlapping fibromyalgia/thyroid symptoms.  Yes, I did read on many websites and books that there is a definite connection between the two.  

          Wendiful, I went onto the website that you mentioned to check out the MaxGXL, but it does not appear to be the correct website.  Do they have an official website other than this?



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        • 0 votes vote up vote up

          Queenbee wrote Sep 28, 2008
        • Unfortunately, the diagnisis is difficult, at best, to get to. I’d say first and foremost have your thyroid checked. It’s a simple blood test. Most people with fibro also have thyroid problems.
          From there...if there is any way you can see a rheumotologist, it’d be better. Be as specific as you can when describing your symptoms to your doc. Detail the pain (when, where, how, etc) as much as possible.
          Then, you cross your fingers and pray that your doc has an open mind and a broad background!
          Good luck!!



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