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  • Medication(s)

    17 posts, 8 voices, 1040 views, started Jul 30, 2008

    Posted on Wednesday, July 30, 2008 by Mayra Braselton

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    • Amethyst
      Offline

      Describe your experince with meds and how you’ve dealt with side effects, if any? What are you currently taking, and what have you taken in the past.



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        • 0 votes vote up vote up

          Wendiful wrote Aug 17, 2008
        • Hi Mayra,

          I have had chronic pain for just over 2 years now I have had no relief until October of last year when I started to take a product called MaxGXL it worked so good I joined as an associate it reduced my pain by over 50% within the first 2 months, now I only get a small amount of pain now, I went away and forgot my max at home and I had forgotten how bad the pain was as it slowing came back as I was doing my normal activities that I could not do before I called home and had my Max Fedexed out to me I didn’t think I could last another week without it.
          If you would like to check it out here is my site www.comeonmax.com
          Wendy



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          Mayra Braselton wrote Aug 17, 2008
        • Hi Wendy, welcome to the group! Thanks for the info, I’ll check it out.  What type of pain are you experiencing and how did it come about??

          Talk to you soon!

          Mayra



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        • 0 votes vote up vote up

          Wendiful wrote Aug 18, 2008
        • Hi Mayra,

          My pain came from a car accident in May 2006.  I have massive headaches, pain in both arms, shoulders and neck, I have TMJ, lower back pain and knee pain.  Some days I wonder how I get through it at all, the pain is from a stabbing to gridding and just plain ache and tenderness sometimes it is hard to explain what it feels like.



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          Kajenn wrote Aug 21, 2008
        • Hi girls,

          This is difficult to talk about but I’m just going to dive in.  I suffered from chronic pain for several years.  Monthly migraines (some lasting over 70 hours), lower back pain, etc.  I received epidurals for the back pain.  As the pain progressed, my energy level went to zero.  My pleasure centers shut down and I really stopped living.  It was difficult to enjoy anything.  My friends wanted me to get out, but even when I did, it was like wearing a pair of black and white sunglasses.  It only made me sadder that I couldn’t enjoy what I was doing.

          My stress levels went through the roof.  I went to a psychiatrist and he put me on anti-anxiety medication.  He promised me that it was not addictive.  Well, it was.  It did nothing for the pain and although my panic attacks subsided, I ended up in bed with no motivation to live.  If you have a doctor suggest putting you on any “benzos“:  Klonopin, Xanax, Valium or Ativan, please seek another opinion.

          So, during a painful withdrawal, I suffered a retraumatization of the abuse I suffered in childhood.  The reason I’m telling you this is because it ties into how I got help for the pain.  My new doctors put me on brain medications that also specifically help pain.  Apparently, it’s very common for survivors of childhood abuse to experience physical pain in adulthood.  The pain is NOT in your head.  It just is what it is.  And the longer you suffer from chronic pain, the more likely your brain will lock into a “pain loop“.  Then it’s so much harder to break that cycle.

          I am currently taking 50 mg. of Topamax/day, 50 mg. of Elavil/WEEK, and 150 mg. Seraquel/day.  For my migraines I take Frova which, in my opinion, is a miracle drug (NO side effects, just no more migraine).  I have no more back pain at all.

          I used to be very anti-drugs.  But chronic pain is unbearable and no way to live.  Although I try not to think about being on drugs forever, when I think about living with chronic pain, PTSD and anxiety, these medications are a hands-down winner.  I figure, some people have handicaps you can see and they have to accommodate.  So, what makes me so special - just take the darn things and get on with it!

          I hope you find your paths to health and well-being in whatever works best for you.

          Many blessings,

          Karen



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          Mayra Braselton wrote Aug 22, 2008
        • Hi Karen!

          Thanks so much for your honest experience with meds.  I can totally related to your issues with meds.  I do find it most helpful to talk about my concerns with others in my situation, to get a broader perspective.  I look forward to hearing more about life in general.... :) Take care, Mayra



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          Cheryl Phillips wrote Sep 5, 2008
        • Hi—
          After my accident a year ago, I’ve had different levels of pain from injuries I suffered in the accident. After both of my knee surgeries I was given percoset, adavan, oxycontin and morphine in pill form. I’ve suffered from headaches (hit my head on the steering wheel), back pain, knee/hip pain and more. I now suffer from insomnia and I refuse to take anything for that. I don’t take anything for pain...when I took some of these meds post surgery, I was one strange human being!! I didn’t make sense, I would pass out mid-sentence, etc etc.  

          I’ve learned to deal with some of my pain issues and I wish there were meds out there that worked on pain but didn’t mess up the brain!!



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          Kajenn wrote Sep 6, 2008
        • Hi Dailyblonde, There is one drug that has no side effects and my doctor says she hears this from others too.  Frova is a headache medication that is being recommended for hormonal migraines.  I have found it works on any bad headache.  It’s the only pill of any kind that I feel no side effect from whatsoever.

          The brain drugs have completely eliminated my pain, however they do have some side effects.  I have a feeling that Topamax would have no side effects if taken alone but it may vary from person to person.  Chronic pain has an impact on the neurotransmitters in the brain so this is why the brain drugs help with the body pain.  It's a completely different way to approach it.  I was on Vicodin too and I can relate to the strange human being comment.  Who knows what came out of my mouth!

          What I’ve learned is that pain can go into a cycle once established in the brain and then it’s difficult to break that cycle.  Have you seen a neurologist or been to a pain management center.  I don’t know if they would deal with the brain drugs but they may offer another solution for you.

          Good luck and keep us up-to-date!  -Karen



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          Cheryl Phillips wrote Sep 6, 2008
        • Thanks so much!! There was a point that the doctor was going to send me for pain management in a clinic. I suffered from something called Regional Sympathetic Dystrophy (CRPS) and my doctor caught it very early on...thankfully. I still have many of the symptoms but right now the hip and back pain from being so out of kilter is the most painful.  

          I’m managing...some days are worse than others...but I really don’t have much I can do with three still at home, I suck it up and sneak some rest time in when they are in school. I’m typically really, really active so being so sedentary for many months hasn’t helped. I cannot WAIT to get my knee replacement so I can start moving better and more often!!
          Thx again!



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          Kajenn wrote Sep 6, 2008
        • I can tell you that a lumbar support cushion is really helpful in the car and wherever you sit for an extended period of time.  They can be found at Bed, Bath and Beyond.  It’s a wedge-shaped cushion with a hole in the back so the coccyx doesn’t touch.  Everyone who has bought one says it helps them through their day better.  Good luck!  -K



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          Carine Nadel wrote Sep 6, 2008
        • I have RA, OA, CRPS and a couple of disinigrating discs in my neck.
          I’m on about 10 different meds. they all do their jobs to various degrees on various days.
          I keep myself moving with walking and PT exercises. My main goal-not to go backwards. Which, as we all know, w/ chronic pain, is all but impossible. Having a support group really helps.
          No matter how supportive your family is, they have no idea what you actually go through, cuz they are not there.



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          Cheryl Phillips wrote Sep 6, 2008
        • Hi Carine—
          CRPS is something that most doctor’s pass off as “all in your head“. I got lucky and my doc has put a lot of time in learning about it and recognized it quickly.  

          I don’t have much family outside of my children—a sister and brother who are quite busy...and my parents have both passed away. :(  I rely on my physical therapy, my doctors and my children for support and am no longer afraid to ask for it.

          Chronic pain is the worst thing I’ve ever experienced but I try to distract myself. It’s nice to be here on this site and find some great support from others who understand!!

          Cheryl



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          Carine Nadel wrote Sep 6, 2008
        • I was very “lucky” w/ my case of CRPS, my dr knew all about it and took one look at my foot and my symptoms and sent me for an iodine test-lit up like a Christmas tree.  Plus, he’s been my main care provider since I got disgusted w/ my physical medicine doctor 10 years ago.
          I actually might still have a touch of fibro, but he was so used to treating that and back problems (which I almost forget about having w/ all the rest)that that was all he saw.  My rheumy who is now head of OC kaiser permanente rheumatology, was truly my savior.  I was at the point where I couldn’t even open my jaw or walk w/o problems.  Okay, the CRPS in my foot is bad, but better than it was 6 months after the initial break.

          Cheryl, where is your case of CRPS and what did you do for it?
          I went to PT and do the exercises religiously and take neuronton (gabapentin).  It doesn’t really help as much as I’d like and I lose balance, but the more serious symptoms have definitely improved.



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          Deb Link wrote Sep 13, 2008
        • I am currently on medications. The ever growing list is long of things that have been “tried” on me.  As I see it my body is not lacking in: cymbalta, klonopin, xanax,effexor xr,ambien, tramadol, ultram er, welbutrin, prozac....
          Need I go on.  I understand that medications have their place but I don’t believe so for chronic issues.  The meds themselves cause side effects that are just a crappy as the symptoms they try to cover up.  All a medication does is cover up the underlying symptom.  It doesn’t cure.  It will never cure.  I am currently working w/ alternative medical providers and I intend to be off of all meds by 2009 and used natural things my body knows how to similate.



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          Mayra Braselton wrote Sep 17, 2008
        • HOLD THE PHONE!! Are you on all those meds at the same time??

          I currently take Cymbata as well. What type of alternative things are you researching?

          Thanks for posting, and I hope to talk to you soon :)

          Mayra



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          Dennie05 wrote Oct 28, 2008
        • I know this is an old post (but I am new to Fab40+) so hopefully someone will see it.  There has been alot good results from people drinking MONAVIE. They are able to reduce or get off their prescription meds by drinking 2 oz in AM and 2 oz in PM.  MONAVIE is a fruit blend with the primary ingredient being the ACAI berry from the Amazon.  I don’t have fibromyalgia, but I know people who do and having great results.  I do have chronic pain issues (neck and back) and carpel tunnel...and drinking Monavie everyday makes the world of difference!  If you are open to alternative therapies, than you may want to consider it.  Email me if you want more info.  Thanks for your time.



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