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  • Medications

    32 posts, 11 voices, 1084 views, started Sep 22, 2008

    Posted on Monday, September 22, 2008 by Deb Link

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    • Garnett
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        • 0 votes vote up vote up

          Coachmombabe wrote Sep 22, 2008
        • I’ve never really pursued treatment for FMS. I do take naproxen occasionally for pain, but not on a regular basis. I wonder if there are some good supplements that are helpful in dealing with the symptoms of FMS. I’m going to try elderberry juice for energy. I’ll let you know my results!

          Blessings,
          Cindy



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          Queenbee wrote Sep 22, 2008
        • You are exactly right, Deb. We are guinea pigs. I do some pretty extensive research before I’ll start a new medication. I’ve been down the road of some horrible side effects and don’t want to do that again. That’s why I won’t take Lyrica. There’s not a log of good press on that one, other than the manufacturer paid advertisements.
          I had great success with some supplements a few years ago. My chiropractor told me it was the malic acid that was did the trick. That and mangesium are supposed to be great. Some people swear by anti-oxidants.
          I think it’s hard to find non-traditional medications without falling for some hoaxes. Some people prey on our desperation....



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          Dee Dee Shaw wrote Sep 22, 2008
        • My mom used to take 13 meds - now she is down to one (for bp). I take none. Fried my liver taking otc pain releivers like Tylenol and Advil. I would alternate back and forth. Have been pain free and med free for the past 5 years. I use a combination of antioxidants, 100% food based multi vitamin, phytosterols, phytonutrients, and glyconutrients. The only time I hurt is when I run out of any of the above. The two most influential are the phytosterols and the glyconutrients I think.
          You have to also change eating habits. Get the artificial sweeteners out (even flavored water). They are in everything, even most toothpastes! Food colorings, especially red #40 and blue lake need to be elminated as much as possible. I will also agree that many people are sensitive to dairy and gluten, and it doesn’t hurt to do an emlimination diet to see if it helps. You have to be off the foods for two full weeks to know for sure if it will help. Some people notice results sooner, but not all.  

          Sharing Hope,

          Dee Dee



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          Queenbee wrote Sep 22, 2008
        • Great points, ladies. My doc has been telling me to try life without gluten for years but I just refuse to listen to him. Give up my pasta?  Are you kidding?
          Most recently I’ve given up Aspartame. Then I was looking on my sugar free coffee sweetener and saw that it has MSG hidden in it. My soul is telling me that something I’m doing - eating - taking is toxic to my body. Now it’s just a step by step elimination.
          Great points!! Thanks for sharing!
          B



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          Dee Dee Shaw wrote Sep 22, 2008
        • There is a great book called Excitotoxins that will help you search out all the things that are slowly poisoning us.
          Even with a healthy diet, I didn’t get better until I added the nutritional supplements. I haven’t eliminated gluten or dairy, but we drink raw goat milk (I have children who are very allergic to cow dairy products. They were born after I started having health problems so I wonder if that has something to do with it.) And I have made fresh ground wheat bread for years. Still has gluten, just not all the other yuckies. If bread is your thing to not give up, you might try the sprouted wheat bread at the store. It is more digestable.



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          Linni wrote Oct 13, 2008
        • thanks for all the great suggestions! i hate taking meds, and stoped all mine a few years back.. my dr. has also told me diet is an important key, as well as exercize, and rest.. i am starting to change things for the better in my diet, and i know it will be the best thing i can do!
          God Bless
          Linni



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          Rena Bennefield wrote Oct 14, 2008
        • **Thanks for all the suggestions..They are great...I have done like many of you and researched this Nightmare of a burden...what I didn't take into consideration while I was eating this and supplementing that..Was the other health issues..I have debilitating arthritis and a herniated disc..Added with a narrowing of my spinal cord..I have Hypoglycemia and bad allergies..I suffer with eczema ...I am battling IBS as well...My point is that no matter how you change your diet, what supplements you take, If you have anything that weakens your immune system..You will continue to have out breaks...I am being treated for these other problems as well..If I get a simple cold..I can be knocked down on my behind for a week..I won't lie and say I never had times when I felt my Fibro was in a kind of remission..I have had times when I would never have guessed I had anything wrong...I have been dealing with this for over 20 years..Since it was first diagnosed and only a hand full of Dr. even acknowledged it was a problem.. I was in a Fibro self help group in Michigan..It's not a "Nationally" know group..Just a group of women who gave one another emotional support and spent countless hours researching all avenues for help..a miracle..Anything...One other thing that we discovered was that most of us had some kind of mental issues..Everything from OCDO..To Schizophrenia...Manic depressive, Borderline personality disorders, and so on..These to play a role in the out breaks..Now not taking meds is something we all hope and pray for. Realistically your going to take something for the other problems ...I don't believe there is a way to get by without them.. Taking meds for a health problem is what we have to do to have a active life.. If you were a diabetic or cancer patient you would take meds for that...Illness is illness. No one wants to sit by ideally and watch our lives pass us by from the comfort of a couch and knocked out on meds...We All Want To Live....Not Just Exist.. Keep up the good work ladies..Hopefully one day we will all be pain free and living large... God Bless...



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          Dee Dee Shaw wrote Oct 14, 2008
        • Kataramoon,
          I don’t think any of us were born drug deficient. In my quest to discovery wellness, I found out alot about meds too. They are all toxic, and they all have to potential to kill you. In fact - properly (yes I said properly) prescribed drugs are the number 4 killer in America. Something is wrong with that picture. We may have chemical imbalances (I know I do -mental imbalances run in my family too) but I prefer to balance mine with plant chemicals (like God intended for us to have in our normal daily diets.) The biggest problem we have in America is convenience foods, and the fact that doctors have been convinced by the pharmaceutical industries that we can ‘fix’ ailments with drugs. Diabetes is completely manageable by diet, but not many people are willing to go there. We live to eat instead of eat to live. This is such a soap box for me, simply because I was once sucked in too. I want people to realize that drugs aren’t the answer. They can provide a short term fix, but they won’t get to the root of the problem or solve it.
          Most all of the major conditions we suffer from today (diabetes, heart disease, cancer, and all auto-immune conditions) are enviromental (and by that I include diet) and preventable.
          To live large we have to take control of our health - and not just try to manage our illness. It does take some time, but what is a 4-6 month committment in the grand scheme of things? Of course, when you get your health back, it has to be a life long committment...but if you are living large and well, who would want to get off that bandwagon?!

          Sharing Hope,
          Dee Dee



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          Rena Bennefield wrote Oct 14, 2008
        • **Dee Dee Ok =) slow down..I get where your coming from if you go back and reread what I said you would see I agree Pain free and Medication free is what we all hope and pray for.. I was a nurse and I know that many people including myself have sought out other means of dealing with our pain..At one time I was on about 15 pills a day...I lost a year of my life..I stopped taking all of them and I had to detoxify myself..I went through the withdrawals and chills, sweats..All by myself..That was about 5 years ago..As of right now I do take 3 different meds..And I am able to live and function quite well..Accept when I have a Fibro. Attack, Then it's in the bed with a heating blanket..I do believe there are some illnesses that can be remedied by natural means. But you have to remember that if you took a poll you would see that at least 75% or more could not and cannot afford to buy all the items needed to heal their selves. Medicaid and Medicare will not cover these items..Just as people who have insurance through their jobs..They will not pay for all the OTC items ether... As for the diabetics not all can be controlled by diet alone..On a personal note I have a cousin who is insulin dependent..Her body cannot produce the insulin..As for Cancer patients..I am sorry..I know you have a passion for this..But I worked for a long while on a oncology floor..And the pain those people suffer cannot be alleviated without the use of some very strong pain medicine...I pray every day that researchers will come up with a answer for people who suffer things like Fibro...I myself will not give up the meds I now take for pain, sleepless nights, and muscle spasms... I only wish that the answers were so simple...Keep up the good fight and keep reaching out...



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          Queenbee wrote Oct 14, 2008
        • I admire your passion, Dee Dee, but can’t help but be a little offended.  I’m so happy that you’ve found happiness and relief through a natural course.  That’s so awesome! However, what works for you don’t necessarily work for everyone.  Please do not pass judgement on those of us that feel traditional medecine is our only hope. Unfortunately, there is not a “one size fits all” treatment for fibromyalgia or for most other illnesses.
          I welcome your input and admire your passion more than I can say, but please be gentle on those of us that are mere mortals!
          QB



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          Dee Dee Shaw wrote Oct 14, 2008
        • I didn’t intend to offend anyone, nor am I passing judgement. I respect everyone’s right to make choices regarding their health. I wrote a response post earlier and lost it. And am too tired to write it all out again.  

           Why have you come to the conclusion that conventional medicine is your only hope? I changed that from traditional, because that would imply that throughout history chemical medications have been employed by doctors. Why do you think that there is not a one size fits all approach to improving health? I think there is... but I also realize that althought it is simple, it isn’t easy. Our bodies have all been ravaged by the toxins we have been exposed to, but in different ways, so even though the approach could be the same, the specifics might vary.
          Most people think in terms of the allopathic paradigm - notice a symptom, treat the symptom, make it go away - viola - you aren't better, but you feel better... A wholistic approach says there is a root cause to the symptom - determine the root cause - address and correct the root cause - symptom and problem go away - viola - you are better.
          In my wellness seminars I liken it to taking the car to the mechanic because the ‘check engine’ light is on.(symptom) Would we be okay with him just disconnecting the fuse, because he was unable to fix the problem? If the radiator needs water, then the way to fix it would be to add water (and look for a reason it leaked in the first place) - not disconnect the fuse. Our cells have certain basic needs (which increase when our bodies are under stress). It just makes sense to address those core cellular needs, doesn’t it? There is not a doctor out there that wouldn’t agree with this statement “If all the cells in your body are healthy then you will be healthy.” But they don’t think on a cellular level - they think allopathically because that is how they were trained. Treat the symptom. I am not downplaying the need to manage symptoms, and drugs are very helpful for that. I am suggesting that the root cause of all illness is unhealthy cells, in one form or another. Sometimes determining what all the missing links are takes awhile. Where I might not have a deficiency in one nutrient, you might. Or I might have bacterial or yeast issues that need to be taken care of, where you don’t. Everybody is different, but that doesn’t mean that you have to take a different approach to regain your health.
          One of the things that blew me away when I was attending a doctor led seminar was to learn that we have never cured a disease with medications. I had never even thought about it. The only diseases we have cures for were actually discovered to be nutritional deficiencies. Beri-Beri, palegra, scurvy.... and there a few others. The point is - if that is the case, why are we not looking in that direction for answers? It is not just me - all the people I have ever met or read about who found healing (apart from supernatural) have found it outside the allopathic model, most of the time it involved nutrition. At the least, it involved some type of body balancing. It is something to ponder....

          Sharing Hope,

          Dee Dee



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          Rena Bennefield wrote Oct 15, 2008
        • **Well Ladies all things considered..and I think we would all agree that we are thankful for any and all suggestions, thoughts,  concerning our condition are welcomed...but I come here for support and understanding...I know I can come here when I am in pain and share that pain with others who hurt as well..Anyone who has this condition will tell you..Unless you're talking to someone who has it..There is no way for them to understand the pain, depression, and aloneness they feel..And if you are so lucky as to be healed from this condition through whatever avenue you took..By all means share it with us..But I do not come here to be criticized, and lectured to. I don't want to be made to feel I have failed at something that I gave 100% to and it did not work for me..I am the one who knows the level of my pain and I am the one who cannot wear my normal clothes because my skin screams PAIN if I put on a bra...and I don't appreciate anyone who comes here with a different agenda...to try and sell me on an idea that I clearly am not interested in spending any more of my precious time and hard earned money on...Last Sunday when my Fibro was at a peek and I had a very severe attack of IBS and I was laying in the bathroom floor for an hour and forty five min.. Screaming in pain and begging to die..My only thoughts were God Please Heal Me...and trust me if my boyfriend had brought me a hand full of some herb or supplement...or whatever..Instead of my Pain Pill and Muscle Relaxer..I would have taken his head off...I know how toxic meds are...but so are herbal supplements and vitamins..People who have food allergies have to be very careful when they decide to take "natural" medication..No matter what your choice of relief is... follow the old saying...Everything in moderation...This is Not a debatable subject..And it is not a forum to argue about right and wrong..It is a place to come and share and support..This is my final post on this particular post..I do not need to get stressed and angry..It will only bring on an attack of my Fibro and IBS...God Bless and Good Luck..



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          Dee Dee Shaw wrote Oct 15, 2008
        • Once again, I did not mean to offend. I know it is easy to miss intentions when the words are on the page and not accompanied with body language. My initial response was to Deb’s original post. I am an outside the box thinker. Sometimes it is not easy to stretch ourselves outside the box. Sometimes when I encourage people to think that way, I come accross too zealous. I am not faulting anyone from using meds, just sharing what I have learned. Glycomics and nutrigenomics are the new frontier. In the studies that have been conducted addressing 4 Core cellular needs has shown improvement in the health about about 85 percent of the participants. Does that mean the other 15 percent are beyond help... or just that there are other missing links?



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          Jomi wrote Nov 17, 2008
        • !http://images.fabulously40.com/uploadedimage/2497/thumbx120/hpim0690.jpg!The way I have felt since Saturday night I would be thankful for a morphine pump right about now!!!
          I want to sit here and scream, even though it won’t do any good. It’s all I can think of right now. I know that my husband will be home soon and I will have to act as if everything is fine..he can’t understand. He knows that I don’t feel good, but since it can’t be seen like a broken arm.......need I say more?
          I tried Lyrica last year. It worked great for 6 months with no side affects. Then it stopped working.
          I just don’t know!


          Jomi, Your links have been removed, please consider upgrading to premium membership.



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          Mztracy wrote Nov 17, 2008
        • I DO think out side of the box. We can think out side of the box all we want to. Sadly that is not going to help those uf us in real pain with real diseases.  

          I think where the offense comes in are the comments such as: I am an outside the box thinker. Sometimes it is not easy to stretch ourselves outside the box.  Just because we do not follow or buy all the otc powders etc, does not mean we do not think outside of the box.  

          I eat gluten free, NO SOY either. Studies have shown soy is BAD!! My hubz is going to get me the article and i will share it here. He researches all the time to help me.

          Kat, jomi, queen this is what i follow. I lost 20 pounds with minimal excercise. (as much as i can from my chair)
          [Link Removed]
          it is tough to start, but it gets easy.  

          There are lots of foods people with autoimmune disorders should avoid. Again, as soon as hubby gets me the links i will add them.  

          Kat, like you knowing your disease and how to take care of you...I am the same with my MS. No one knows more about my ms than I.

          We all know it would be so much better to not be on prescribed meds, but until there are ways that really work i will stay on them.  

          My sisters cancer was the worst you can have. The doc still wonder how she survived. She, being a nurse, wonders also. All 15 of her 15 nodes were cancerous. Without the extensive medications, chemo, radiation, pain meds, she would have died. So I Thank God for giving doctors the brains and the know how to truly save peoples lives!


          Mztracy, Your links have been removed, please consider upgrading to premium membership.



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          Mztracy wrote Nov 17, 2008
        • jomi, i so hope you begin to feel better. i know the pain you are feeling and how helpless it makes you feel. My thoughts and good vibes are heading your way!!!



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          Dee Dee Shaw wrote Nov 17, 2008
        • Tracy,
          The offenses can be taken both ways.

          I DO think out side of the box. We can think out side of the box all we want to. Sadly that is not going to help those uf us in real pain with real diseases.  

          Are you insinuating that people who get results from natural solutions don’t really have pain or disease. Is it just in our head and so the improvements are really just placebo effects?

          Poor Deb has deleted the original post (which I was going to refer back to.) I am not sure when that happened. If I remember correctly she was asking about alternatives to meds and saying she felt like a guinea pig.  

          I have really enjoyed Fab40 because people can have different opinions and voice them without being condemned or accused of being insensitive. It is rare that conversations get out of hand. I don’t mind agreeing to disagree, but I do mind being accused of not really having a disease or real pain. I am not mad, though I must admit I am a little frustrated. My original responses here were directed toward the original post which was about finding other answers besides meds. If trying to reach out and share my experiences in hopes that it will help someone else is offensive, then I am sorry.



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          Linni wrote Nov 17, 2008
        • well, i have ALL 18 points of fibromyalgia, IBS, and other things. what i DO KNOW, is that diet and exercize is KEY! im not on any meds.. i stoped them in 2005.. im in pain EVERYDAY! i just have done research, and have met folks who have what i have, and have changed thier eating, and the fibro is GONE!

          my boss has been in remission from cancer for 4 years, since she started eating raw. one of the ladies that is in my bosses class that teaches them to eat better, has had her tumors shrink ( in her breast ) she refuses to do chem or radiation..

          one of the other folks in the group needed insulin EVERYDAY! went to California, to the place where they teach you how to change your eating, and eat raw, and you know what? they no longer need their insulin!

          i have learned more in 2 years than i have in the 10 that i have been diagnosed with fibro..

          Dee Dee, thank you! I appreciate EVERYTHING you blogged here, and did NOT take any offense to it at all!

          Blessings
          Linni



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          Mztracy wrote Nov 17, 2008
        • First, her post was gone already when i posted, and she had left the site also. Not sure what you were trying to imply there.  

          Second, please do not try and bait me. You push a tad too hard with your ideas, when many have stated they have no desire for it, you keep trying to point reasons at them, like the sentence i added earlier.

          As for my comment, I admit, it sounded wrong and i apologise for it. I am sure there are people with real diseases that can be helped. but it will not take away a true imbalance or autoimmune disorder.  

          As i and others have said, it is awesome it is good for you. But for us it is not, yet you keep replying that we do not look outside of the box, etc. You truly do not know anything about my MS and what MS is.  

          Now I am done.

          And jomi, you are most welcome!!



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          Dee Dee Shaw wrote Nov 17, 2008
        • Thank you Linni.
          Tracy, I was not implying anything except that my responses were directed at the original post. Obviously she felt the need to remove it. She asked us what we were doing naturally as she was tired of medications and said she felt like a guinea pig.
          How can you ask for an apology, and the repeat the same accusation? You said:
          As for my comment, I admit, it sounded wrong and i apologise for it. I am sure there are people with real diseases that can be helped. but it will not take away a true imbalance or autoimmune disorder.
          What it sounds like to me is that you are sorry you offended me, but you still refuse to grant that those of us who have recovered our lives don’t really have what the doctors diagnosed us with having. The inverse is true. I am sorry I offended you (or anyone else) but I still believe that imbalances and auto-immune conditions are a break down in normal bodily function, and if you restore that function then the body will correct the problem.  I am not looking for drama, and I agreed to disagree, but I won’t agree to agree. I won’t retract my assertions, nor will I concede that people who get results when they put together all the missing links don’t have real, documented, measureable diseases and conditions. I am glad your sister got better with chemo. I am glad Linni’s boss found healing naturally.  

          I am not sure if you noticed how old this thread is. Since the original post is gone and you never read it, it makes it difficult to discuss my responses here since I was directing my comments to Deb and those who were interested in learning more about natural solutions. I wasn’t stepping in looking for an arguement. I still don’t want to argue.



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          Dennie05 wrote Nov 17, 2008
        • I do not suffer from FM or any other Autoimmunine disease (so I am probably out of line in this thread).  I do believe there is alot to be said for both western and eastern medicine, along with homeopathic medicine.  Sometimes it takes a combination of all for help.  Just my 2cents.



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          Jomi wrote Nov 18, 2008
        • !http://images.fabulously40.com/uploadedimage/2627/thumbx120/hpim0703.jpg!I don’t think this should be such a heated dicussion!  For those that can afford vitamins and supplements and find that they work...that’s awesome!
          For those that can’t...there is nothing wrong with medications! For those of you that CAN exercise...more power to you!
          If I exercise I end up on my face..or down for days, not hours. There is nothing that is going to change it. It’s simply MS.  Actually, I can just be walking and end up on my face.....


          Jomi, Your links have been removed, please consider upgrading to premium membership.



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          Jomi wrote Nov 20, 2008
        • If anyonw is interested i was looking at my ms magazine that comes quarterly last night.  There is an article about herbs and ms.  there are many kinds tht interfere with  the way the immune system is or with different meds that people with ms take.  If you are interested in reading the article go to nationalMSsociety.org/clearthinking



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          Mztracy wrote Nov 20, 2008
        • I get that too. There are so many ‘natural things that can add to our ms. we have an overactive system, so anything boosting the immune system can hurt us.  

          thanks jomi!



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          Dana Arcuri wrote Nov 20, 2008
        • When I was diagnosed with four bulging disks and fibromyalgia this year, I did not want to resort to pain medication or anything that would have negative side effects.  I have given myself nine months to go the natural route and use wellness products to reduce the aches and pains.  

          Nevertheless, I am still in pain, I am no better, I still have the same medical challenges from the start.  

          I have spent much money on a huge variety of wellness products, drinks and supplements, but I can honestly share that I am still not pain free. My insomnia is even worse now.  

          Medication may have horrible side effects, but I wonder if it will give me a higher quality of life that I do not have now?



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          Dee Dee Shaw wrote Nov 20, 2008
        • GodsGlamourgirl, I sent you a pm. jomi, do you have fibro too, or just ms? I really don’t want to retype everything I typed out before on my blog, but it is here: http://fabulously40.com/blog/id/4155/ if you want to read a more thorough explanation (although be prepared for differing opinions there too.) :)  

          At the end of the day, we are all responsible for our own health.  

          I hate it that the original post is gone from this thread. It really was about natural solutions for fibro in lieu of the medical route (that she had already tried.)  The group is geared toward fibro, but all auto-immune diseases have one thing in common - an immune system that has gone awry to the point of attacking the good cells. Whether a natural solution or a pharmaceutical one, the goal is the same - to get the body to stop attacking itself.  

          Most pharmaceuticals are geared toward stopping the immune system.
          Some herbs and natural approaches have unfortunately included immune stimulators. If the communication problem (ie immune system not knowing good from bad) isn’t corrected, then stimulators can indeed make the problem worse.  

          There are different natural solutions that provide the tools for the body to communicate properly, and immune modulators to balance the immune system. Combined with an endocrine system regulator, and a good vitamin and antioxidant, they have provided positive results for about 85 percent of the people who have tried these solutions in the clinical trials that have been conducted (with various health challenges.)


          Happymomma, Your links have been removed, please consider upgrading to premium membership.



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          Queenbee wrote Nov 20, 2008
        • Everything in moderation is often a good creed.  Sometimes traditional medications may be the answer.  Sometimes a more natural approach will owrk.  Sometimes it takes a holistic effort combining the best of both worlds.  What works for one person may or may not work for another person.  We must each do that which feels right for us.
          and then if we can honor those that may choose a different path, all the better.  Respect others for their willingness to share what has worked for them in the hopes that it may help someone else.



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