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  • Reflex Sympathetic Dystrophy (RSD/CRPS) & Chronic Pain

    5 posts, 5 voices, 1373 views, started Sep 5, 2008

    Posted on Friday, September 5, 2008 by Cheryl Phillips

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    • I was diagnosed with RSD after my first knee surgery (Nov 07) and my surgeon diagnosed this early and kept on top of it. Many doctors will brush this off as “just nerves” or “pain that is in your head“. I am extremely fortunate that I was diagnosed early because it could have gotten much worse. I still have many of the symptoms since I’ve had a second surgery and now prepare for my third. The brace I have to wear on my leg causes a lot of the icy feeling in my leg and it’s so “mottled” looking when it gets cold...which is a lot.  

      I’ve been so lucky to have excellent intervention and care. However, it’s not the end to my pain. I now suffer extreme hip and lower back pain in addition to a knee that is affected by arthofibrosis and arthritis since the surgeries. I cannot wait to get the knee replacement this fall since nothing else worked. I am already excited at the possibility that I can walk with less fear and no brace. I’ve been in 7 different braces in almost 10 months.  

      I hope to have more time to read thru the commentary here in this group. I’m not at all a pain pill type of girl. I was prescriped tons of painkillers and just knew the side affects would outweight the pain I was feeling..so I am trying to find other ways to conquer the joint pain I have instead of popping a pill.

      Mornings are the worst and some days I’m just about ready to pass out from the pain, but I’ve got a household to run!

      Any suggestions on how people deal with pain would be great. I’ve never been in this position before and after 10 months I want to tell the doctor to pull a miracle out of his pocket! :)



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        • 0 votes vote up vote up

          L J wrote Jun 11, 2009
        • i am exactly where you are with the back pain from getting hurt at work...
          this site is good and alotta people and therapist to guide you along the way!!!! your friend,LJ



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        • 0 votes vote up vote up

          Eraymer wrote Jun 22, 2009
        • Hello have either of you been to see a pain specialist. Ihave severe back and nerve damage in my leg.I have been taking neurontin for it and it really helps. My husband also goes to the pain clinic and he is on topamax for his RSD and  it really helps him. Hope you find something that helps you.

                 beth



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        • 0 votes vote up vote up

          Doreen XoXo wrote Jun 22, 2009
        • My son has an injured arm (ran over by an SUV) which caused severe damage.  He has been on painkillers almost two years now.  They ruled out RSD but to me it seems like that is his problem.  He feels pain where he shouldnt.  I just dont know what he should do.  He was in therapy for two years and now hes at a standstill.



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        • 0 votes vote up vote up

          Marilyn09 wrote Jun 22, 2009
        • Cheryl I hope you got a 2nd opinion.
          I am worried that you look so forward to being pain free- that you think that by cutting the knee out you will be pain free- but what about the rsd?  What if its worse?



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